Affiliate charities

Arrhythmia Alliance

Arrhythmia Alliance (A-A), The Heart Rhythm Charity, is an international coalition of charities, patient groups, patients, carers, medical groups and allied professionals.  These groups remain independent, however, work together under the A-A umbrella to promote timely and effective detection, care and management of arrhythmias.This is achieved through a number of projects, campaigns, meetings, events and patient advocacy. A-A works to raise public and medical awareness of cardiac arrhythmias (heart rhythm disorders), which affect more than twenty million people worldwide.

In recent years, national partners have been established in more than twenty countries worldwide, so A-A now represents tens of thousands of individual members, including patients, doctors, nurses, physiologists, cardiologists and carers.The unique nature of this umbrella organisation provides an integral information and support network for those affected by arrhythmias, and a powerful force for health service improvement.  Materials published by A-A are approved by an international executive committee and endorsed internationally.

For more information, visit http://www.aa-international.org

Atrial Fibrillation Association

The Atrial Fibrillation Association (AFA) is an international charity which provides information, support and access to established, new or innovative treatments for atrial fibrillation (AF). AF is the most common ‘arrhythmia’ – a heart rhythm disorder. It is estimated that more than twelve million people worldwide are diagnosed with AF, however, it is possible that many more are undiagnosed.

 AFA strives to provide patients and medical professionals with information and support, to achieve optimum detection, care and management of AF. This is achieved through a number of projects, campaigns, meetings, events and patient advocacy. The charity works closely with medical professionals, the Department of Health, the Government, patients, carers, patient support group members and allied groups.

All resources published by AFA have been approved by an AFA Medical Advisory Committee and endorsed by leading national and international societies.

For more information, visit www.afa-international.org

The AF Report and AF Stroke Risk Calculator

AF Report: www.preventaf-strokecrisis.org

An expert report on AF and the considerable challenge that it presents.  Designed to be an accessible yet comprehensive resource for all engaged in the improvement of AF care, from patients to healthcare professionals and purchasers.  The AF Report outlines the background, explains the principal challenges and contains a robust six-point call for immediate action to prevent AF from creating a stroke crisis.

AF Stroke Risk Calculator: www.afstrokerisk.org

Launched alongside the AF Report, the AF Stroke Risk Calculator was developed to enable simple and accurate calculation of risk scores, with which to determine recommended treatment strategies based upon the most recent international guidelines.  As simple to use for patients as for healthcare professionals, the Calculator collects simple information but provides a comprehensive risk stratification summary and interpretation guide according to the ESC 2010 AF treatment clinical guidelines.

STARS

Syncope Trust And Reflex anoxic Seizures (STARS), The Blackouts Trust, is the leading charitable organisation for support and information for both patients and professionals on syncope.  STARS’ work is guided by a multi-disciplinary medical advisory committee who act as an advisory, support and management committee.  The overall aim of the charity is to ensure that anyone displaying symptoms, such as unexplained loss of consciousness, receives the correct diagnosis, the appropriate treatment, informed support and sign posting to the appropriate medical professional. 

STARS provides information and support from diagnosis through to treatment and long term management of syncope for all age groups.  In line with the launch of the UK NICE Transient Loss of Consciousness Guidelines, STARS published the Blackouts Checklist, a patient-directed checklist which provides information and advice on the major reasons for experiencing a blackout. The checklist helps to prepare a patient for a doctor’s appointment, and provides information on what to expect at a hospital appointment. 

All STARS resources are medically approved and endorsed.

For more information, visit www.stars-international.org

Join our community!

Whether you’re an arrhythmia specialist or a healthcare provider with an interest in arrhythmias and syncope, register and include your name on the international database.

We would like to highlight and share information on local and innovative arrhythmia services across the globe. If you would like your service included and featured on the website as an extended part of our community, please contact info@heartrhythmspecialists.org. This service is free of charge and while details of the arrhythmia medical services available at your centre are listed, no personal contact details will be shared.